35 Dementia - Community Baseline Evaluation for a Dementia Friendly Community

For a to-be more dementia friendly community a baseline evaluation will inform of the state of dementia friendliness at the start. 

Desk Study
For Swanley an on-going desk study revealed a number of dementia-related support services. Follow-up activities will result in a series of information materials, namely:

• a directory or series of mini-directories
• some of the posts on this blog
• an ongoing diary of dementia -related events
• a panel of speakers on a number of relevant topics.

First Community Meeting

The first communiuty meeting resulted in 25 residents, councillors, community representatives and servives providers, etc revealing insights into experential views of the kinds of need, change and actions. It resulted in action leading to the wider distribution of the surveys  

Surveys

A series of anonymous but targetted surveys provided insights to the following:

• an aggregated general picture of awareness and inforamtion held by residents, councillors, those in businesses, service providers and the like
• the needs of those in the town who are living with dementia
• the needs of families and carers of those who have dementia

Second Community Meetings

The second community meeting received and then discussed the following:

• the analysis of anonymous results of the surveys
• the need for future actions - both joint and several
• ways of partnering projects or programmes
• coordination of the many initiatives by  individuals and organisations
•  the setting up of a dementia forum or dementia action alliance. 

34 Dementia - Swanley Library Event - 2pm 17 December 2013 [Update 1 - 18/12/13]

Swanley Library had an event about Swanley as a dementia friendly community (DCFSwanley) and dementia-related materials and services available through the KCC Library Service. An impromtu singing of carols was enjoyed together with mincepies. The results of the baseline evaluation of DCFSwanley were displyed. 

Community libraries are a powerful hub for awareness and information about dementia and dementia friendly communities. 

Support and services may be sourced community libraries in the following:

• hardcopy books, magazines, films, DVDs, CDs, etc
• online websites by government, local goverment, charities etc
• made-up reminiscence boxes, photo albums and other themed materials
• games, puzzles and other recreational items
• specially produced information leaflets about locally available services. 

33 Dementia - World War 2 and Korean War - Long-term Memory of Experiences [Update 1 - 15/12/13]

Today I saw a post elsewhere about some veterans of WW2 and the Korean War who " were not previously diagnosed with "shell shock" are being diagnosed with dementia and are now becoming symptomatic of "shell shock"...".

I had not previously heard of this happening and await further details. However, some time ago I did hear of a person with dementia who following a loud bang dived under the table. It seems that as a child he had lived though bombing raids during WW2. 

The clinical field seems to be "traumatic brain injury" (TBI) which happens in instances like:

• motoring accidents - hence the use of seat belts
• falls in general, but in particular for cyclists - hence helmets 
• falling objects - hence building site workers using helmets
• boxing and other contact sports - hence the use of head gear in amateur boxing
• head wounds, etc arising in battle conditions.

I had previously seen general references to brain injury and dementia. In the last instance there is some clinical evidence of the link between dementia and TBI but I have not found yet any references to shell shock.

32 Dementia - Driving a Motor Vehicle - a Tough Decision for All [Update 5 - 14/10/14]

Introduction
There is no doubt that for many with living with dementia voluntarily giving up driving a car is a painful decision. In some instances the individual concerned will fight tooth and nail to maintain his or her status quo. A diagnosis of dementia has legal consequences. 

Following Formal Notification of Diagnosis
Diagnosis of dementia does not necessarily mean that the individual has to give up driving. He or she must, however, inform the DVLA of the condition by completing Form CG1 (five pages). Hardcopy or online means are available. [See  https://www.gov.uk/dementia-and-driving ]

The authorities may require the individual to undertake an formal assessment of their driving capability. In Kent we have South East Drive Ability who accept self-referrals and other referrals.[See  http://www.kentcht.nhs.uk/home/our-services/south-east-driveability/driving/ ]

Impact
For the family, friends and principal carer the person's gradual decline in driving capabilities is likely to have become apparent - hopefully without a crisis. However, if the driving is such as to be dangerous, self-reporting is essential: otherwise a family member or carer may need to take action. Normally, the person's GP would be able to advise. [See http://www.webmd.com/alzheimers/news/20100413/when-should-dementia-patients-stop-driving ]

Important questions arise for family members, carers, employers and the person with dementia, namely:

• who makes the decision
• when is the decision imperative
• if no action has been taken and a possible liability in law arises, who is responsible.  

Of course, happenings like the following may occur to anyone who is not paying attention, etc. If a persistent pattern arises concern may be engendered. Typical happenings might include:

• not recognising a familiar place or a turning 
• getting lost on a journey - not reaching the destination on a formerly well known route
• getting lost on a jouney - perhaps a little more serious, is not returning home or to a place of work
• driving the wrong way against the flow of traffic   
• not being able to correctly interpret traffic signs
• an accident involving injury or death - here a prosecution may result. 

Employment

Where an individual's employment involves driving, it is certain that the employer will need to know of a diagnosis of dementia. Reasons will include:

•  the need for an assessment of performance of duties
•  insurance concerns.

It is important that the employer have in place policies for assisting the employee to continue driving, subject to appropriate safety. concerns. 

31 Dementia Research and G8 Conference in London [Update 2 - 11/12/13]

We must hope that making the World a more dementia friendly community must be an outcome of the #G8 Conference which begins in London today. The television coverage has already had the UK Secretary for Health and the Chief Executive Officer of #Alzheimer's Society talking to me this morning. [Please do not be mislead I am watching them talking to the presenter.]  

The #G8 Summit on Dementia is intended to build a global approach to dealing with the various dementias which afflict increasing numbers of us - World population. Hopefully, you, I and many millions more will begin talking about dementia to our family, friends workmates and strangers. Awareness and information needs to increase markedly so that the fears and stigmas surrounding the dementias are mitigated or eliminated (latter is the final scenario).  

I'll try and give you  a few leads to what is being discussed at the G8 Summit as the few days pass.

Research        Expenditure on research on questions arising about dementia seems to be a theme - it was highlighted this morning at breakfast. My understanding is that in the Uk it is severely underfunded at present and that our national dementia strategy has an extra £66 million allocated by 2015 over what was set aside.

29B Dementia - Some of our World's Statistics [Update 3 - 10/12/13]

World's Figures
In April 2012 the World Health Organisation published estimates of current, ie at dates shown, and predicted growth of dementia in the World, ie again at the dates shown.

Current (2012)                35.6 million
Current (2013)                44.0 million*

Future (2012)        In 2030  65.7 million
Future (2013)        In 2030  76.0 million*

Future (2012)        In 2050 115.4 million
Future (2013)        In 2050 135.0 million*

The estimates suggest a rough 20-years doubling of our population who are living with dementia. 

Impact
It is almost certain that each of us will be affected by those with dementia. In different parts of the World in the last eight months or so I have had two friends diagnosed with dementia and two others who seem to have memory problems. The impact on their families has been varied. 

For instance, it is estimated that in the United Kingdom the 800,000 living with dementia who are or are not diagnosed, will have in some way touched the lives of 40 million of us!    

Action Needs for Awareness and Information
You may like to review how different countires are or are planning to deal with the predicted growth. At a basic level an increase in each population's awareness and information about dementia might be needed. 

Each country might, for example, develop a cohort of volunteer grassroot or barefoot providers in different contexts, The volunteers could spread ideas, knowledge, and understanding about practical help for families, carers, and of course those on the dementia journey.

*Note: Figures published by Alzheimer's Society on 4 December 2013  - just before the G8 Dementia Conference in London, starting on 11 December 2013.

29A Dementia Statistics - 1 Diagnosis 2 Cost [Update 1 - 10/12/13]

1       People living with Dementia in England: 

   All                              Diagnosed                        Not diagnosed
670,000                           319,000   (48%)                   351,000

                                Range of Percentages  
                                     
   Highest:  Corby 75%             Lowest: Herefordshire  32.8%

   2      Cost to the Economy

   Estimated cost to the economy:      £23 billion.